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Helpful Websites

Clinical Trial Information

The U.S. National Institutes of Health, through its National Library of Medicine, has developed to provide patients, family members and members of the public current information about clinical research studies. 

You can also visit the ASGCT Clinical Trials Finder to search more than 1,500 active and recruiting gene and cell therapy trials around the world.

FACT Allied Learning Center

FACT’s Allied Learning Center is a collaborative effort between FACT, AABB, ASBMT, ASFA, ASCGT, ASHI, CAP, CBA, the FDA, ISCT, NETCORD, NMDP, PACT, Save the Cord Foundation, and SITC to provide a centralized resource for organizations to quickly and easily obtain online modules applicable to their operations and/or training needs.‚Äč

Human Genome Project Information

The Human Genome Project provides basic information on what gene therapy is, how it works, the current status of gene therapy, and recent developments in the field of gene therapy.

National Human Genome Research Institute's Glossary of Genetic Terms

The National Human Genome Research Institute created a glossary of genetic terms to help individuals without scientific backgrounds understand the terms and concepts used in genetic research.

National Institute of General Medical Sciences

The National Institute of General Medical Sciences supports basic research that increases understanding of biological processes and lays the foundation for advances in disease diagnosis, treatment and prevention.

National Institutes of Health - Office of Biotechnology Activities (OBA)

Since ASGCT does not provide referrals or information on specific gene trials. Such information is available through the National Institutes of Health - Office of Biotechnology Activities (OBA).

National Cancer Institute

NCI offers authoritative information about various types of cancer as well as information on a wide range of cancer topics and the latest cancer research. Also find NCI-supported clinical trials.

Find an NCI Supported Clinical Trial 

National Institute of General Medical Sciences: Science Education Genetics

Offers resources to learn about genetics, including recent developments, and profiles of researchers working in this field.

Genetic and Rare Diseases Information Center (GARD)

GARD is a program of the National Center for Advancing Translational Sciences. It provides the public with access to current, reliable, and easy-to-understand information about rare or genetic diseases in English or Spanish.

Foundations and Patient Advocacy Groups

The following list includes various disease specific foundations and patient advocacy groups.

The websites listed above contain information created, published, maintained, or otherwise posted by institutions or organizations independent of ASGCT. ASGCT does not endorse, approve, certify, or control these websites and does not guarantee accuracy, completeness, efficacy, timeliness, or correct sequencing of information on these websites. Use of any information obtained from such websites is voluntary, and reliance on such information should only be undertaken after an independent review of its accuracy, completeness, efficacy, and timeliness. Reference to any specific commercial product, process, or service by trade name, trademark, service mark, manufacturer, or otherwise does not constitute or imply endorsement, recommendation, or favoring by ASGCT.


Last Updated: 02/14/2023

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