We are nearing the end of our 2022 Lunch and Learn sessions. This next event will highlight the importance of parents, caregivers, and patients navigating conversations with providers, as well as a provider's role in educating about the diagnosis. This relationship is essential to building trust in navigating treatment options for individuals who may be eligible for gene and cell therapies. We will hear from a clinician who will share advice on how to guide someone through the process of going from a diagnosis to a treatment plan and the lessons learned from that process. We will also hear the caregiver perspective and learn about resources and other things to consider when navigating your family through this mental and emotional experience.
Resources from this video:
Courageous Patient Network (CPN) clinical trial unit
Catalogue of all materials in CPN clinical trial unit
ClinicalTrials.gov
ASGCT Clinical Trials Finder
Guide on shared decision making (for parents)
Guide on family meeting (for parents)
Agenda
Introduction
12-12:05 p.m.
Navigating the Patient-Provider Conversation
12:05-12: 40 p.m.
Speakers:
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Kaitlin Young Batley, MD, assistant professor, UT Southwestern Medical School
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Jennifer Siedman, director of community engagement, Courageous Parents Network
Moderated Q&A
12:40 p.m. – 1:00p.m
Thank You to Our Sponsors
Learn about ways to support this program
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