People who have received gene or cell therapy treatments, either approved or in clinical trials, have helped further research and have given hope to others who have rare or genetic disorders. This event will highlight their experiences and journeys.
Join us as patients highlight their stories, from navigating the diagnosis process to learning about and receiving investigational treatment options. We'll hear about life after receiving a therapy and patients' outlooks for the future of their disease communities.
Agenda
Moderator: Kim Nye, president of the TESS Research Foundation
Introduction
12-12:05 p.m.
Meet the Patients
12:05-12:40 p.m.
Speakers:
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Jenn McNary, co-founder of Canary Advisors, LLC and parent of children who have participated in clinical trials
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Amy Medina, parent of children with SMA
Moderated Q&A
12:40-1:00 p.m.
Thank You to Our Sponsors
Learn about ways to support this program
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